Freephone Helpline

Are you a parent or carer who looks after or knows a child or young person who is expected to have a short life? If you have questions or want support, please contact our Together for Families Helpline free on 0808 8088 100.

The helpline works on a call-back basis and is open from 10am until 4pm, Monday-Friday.  Outside of these hours and on Bank Holidays, you can still leave a message on our answerphone and we will return your call as soon as we can when the helpline re-opens.

You can also send an email to with your helpline query and someone will respond as soon as possible.

The helpline provides:

  • information on how to access and get the best out of services locally
  • support in using our materials, resources and tools for families
  • detailed information about organisations that provide support in all areas of children’s palliative care
  • signposting to children’s disability charities, grant-making bodies, bereavement support, counselling, benefits information
  • time to talk to trained helpline staff
  • details of how to link with other parents
  • In appropriate circumstances our helpline staff will refer you to Voices for Families, our Advocacy Support Service, for one-to-one support from a legal advocate.

Please note: this is not a crisis service. If you need to speak with someone urgently do call 999 or the Samaritans on 116 123.

Please help us reach out to more families who may need information and support. Download our Together for Families Helpline poster and put it up at your local doctors or community centre.

Helplines Partnership 

helplines partnershipWe are proud to be an accredited member of the Helplines Partnership which is a membership body for organisations that provide helpline services in the UK and internationally. For further information visit the Helplines Partnership website here.


Helpline Confidentiality

The Together for Short Lives Helpline provides a confidential service. This means that we will not share information outside the organisation without your permission. Where calls relate to other areas of the organisation who would be able to help, we will pass on contact details internally to them.

Exceptions to our confidentiality policy 

In exceptional circumstances we may need to break confidentiality and share information without your consent.

Circumstances where we may be required to break confidentiality:

  • A child or young person is at risk of harm
  • An adult is at risk of immediate and significant harm either to themselves or others
  • We are required to share information as ordered by the courts
  • A threat of terrorism has been made
  • A caller is being threatening or abusive to staff or is deliberately misusing the service preventing the helpline being available to support others.

We will always attempt to keep you informed of any action we take if a decision is made to break confidentiality.