Together for Short Lives
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At a glance: the public policies affecting children in the UK who need palliative care

We have compiled a list of all of the public policies published by the UK Government, devolved governments and other statutory bodies that have an impact on children with life-limiting conditions, their families and the services and professionals who care for them. We have written them as references to make it easier for you to cite them should you plan to use them in research, reports or other resources.

England, Northern Ireland and Wales

  • The National Institute for Health and Care Excellence. 2016. Transition from children’s to adults’ services for young people using health or social care services – NICE guideline [NG43]. Available to download from: https://www.nice.org.uk/guidance/ng43
  • The National Institute for Health and Care Excellence. 2016. Transition from children’s to adults’ services – Quality standard [QS140]. Available to download from: https://www.nice.org.uk/guidance/qs140
  • The National Institute for Health and Care Excellence. 2016. End of life care for infants, children and young people with life-limiting conditions: planning and management – NICE guideline [NG61]. Available to download from: https://www.nice.org.uk/guidance/ng61
  • The National Institute for Health and Care Excellence. 2017. End of life care for infants, children and young people – NICE quality standard [QS160]. Available to download from: https://www.nice.org.uk/guidance/qs160
  • The National Institute for Health and Care Excellence. 2022. Disabled children and young people up to 25 with severe complex needs: integrated service delivery and organisation across health, social care and education. Available to download from: https://www.nice.org.uk/guidance/ng213

England

Northern Ireland

Scotland

Wales

Policy and influencing