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Oscar’s Story: Little Haven’s Children’s Hospice has given us hope

Boy with mum and hospice nurse

Children’s hospices are an essential source of support for families facing the unimaginable and this Children’s Hospice Week, we’re shining a light on the incredible work they do.

Adelaide and Rob are parents to 12-year-old Oscar who was born with quadriplegia cerebral palsy, a four-limb movement disorder, and more recently his gut started to fail. He also had a burnout from from dystonia, another movement disorder Oscar lives with, which affected his brainstem and has no recovery. “Little Havens have seen us through really hard time, and during those moments something they’ve given us is hope.”

Watch this film recorded by Little Havens to hear Oscar’s story.

Whether a family and their child need a short break, counselling, symptom management, end-of-life care or one of the many other services they provide, children’s hospices are an essential source of support for families facing the unimaginable.

Yet for hospices in 2023, they face the challenge of rising costs of care, postcode lottery of funding, staffing shortages, and a growing number of more medically complex children and their families to care for than ever before.

This Children’s Hospice Week, please show your support for Together for Short Lives and the incredible hospice in your community.

Family stories