Isabelle’s story: “They took all the strain away and made sure that we could make the most of the time we had with Isabelle”
Isabelle was just a baby when she was diagnosed with Zellweger Syndrome. A very rare...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Lady Tiffany’s story: “I lived in the hospital for three years”
“When I look back now I remember only pain and guilt,” says Stacey, Tiffany’s Mum....
Mikey’s story: Mum Chevonne and dad George are exhausted.
Every day is a bit different with Mikey, he has an undiagnosed condition which was...
Ted’s story: “The time at home meant we got to make such amazing memories with Ted”
Ted was born three months prematurely in May 2017 weighing just 1lb 9.5oz. He wasn't...
Timmy’s story: “When we were discharged we had to manage alone.”
Timmy had cerebral palsy, a learning disability and epilepsy. His mum Alison explains his condition,...
Emily’s story: “Every little moment”
When Emily was born with a severe heart condition, the doctors told family to take...
Emily’s Story: “Whilst praying for a future, we also had to prepare for the worst”
Everyone who met Emily was instantly captivated by her bright smile and inquisitive eyes. At...
Tehya’s story: ‘Eating Spaghetti Bolognese at 5am’
“She was such a tiny little girl when she was born – just 3lb 10oz,...