Together for Short Lives
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Family stories

99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.

Mary’s story: “I’m grateful for every day we get together”

When Mary was five months old, she was diagnosed with hydrocephalus – a condition that has resulted in brain surgery five times. Then, at just five years old, Mary was further diagnosed with MPPH syndrome – a developmental brain disorder...