Paulson’s story: “The Butterfly Fund helped us feel we weren’t alone”
Baby Paulson was welcomed into the world at only 24 weeks on 11 December 2023....
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Rafferty’s story: Support through the Kentown Programme
“We were giddy with excitement, laughing and being playful with the medical staff. We were about to have our third baby. Our boy was delivered and the change in mood was immediate. A ‘crash call’ was made and everything changed.”...
Leia’s story: “Having a diagnosis helped us feel prepared”
When baby Leia failed her newborn hearing test, first-time mum Katie knew something wasn’t quite...
Mary’s story: “I’m grateful for every day we get together”
When Mary was five months old, she was diagnosed with hydrocephalus – a condition that...
Eilidh’s story: “People don’t save money for their child’s funeral”
Eilidh passed away on a Friday aged nine-and-a-half months old. Her mum, Kaitlyn, used money...
Corey and Parker’s story: “We would be totally lost without Claire House”
For Karina and Jason, having a disabled son turned them from first-time parents into full-time...
Gemma’s story: “Siblings need support too”
Gemma is mum to Olivia, Teddie and Jesse. This is their story... A search for...
Orla’s story: Our Center Parcs break was the best gift we could have been given
In March this year, we gifted Orla and her family a special holiday to Center...
Osian’s story: “We lost valuable time at home with Osian, waiting for home care”
“The hospital is for acute illnesses, it’s not for a child to grow and develop...