Archie’s story: “I couldn’t live without their support”
This is Archie’s story, told by his mum, Laura. Archie was born extremely prematurely at...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Winter Appeal 2025: Alex – the boy who loved frogs
Alex was born with complex conditions that left him needing 24/7 care. Despite his challenges,...
Rafferty’s story: Support through the Kentown Programme
“We were giddy with excitement, laughing and being playful with the medical staff. We were...
Paulson’s story: “The Butterfly Fund helped us feel we weren’t alone”
Baby Paulson was welcomed into the world at only 24 weeks on 11 December 2023....
Leia’s story: “Having a diagnosis helped us feel prepared”
When baby Leia failed her newborn hearing test, first-time mum Katie knew something wasn’t quite...
Mary’s story: “I’m grateful for every day we get together”
When Mary was five months old, she was diagnosed with hydrocephalus – a condition that...
Eilidh’s story: “People don’t save money for their child’s funeral”
Eilidh passed away on a Friday aged nine-and-a-half months old. Her mum, Kaitlyn, used money...
Corey and Parker’s story: “We would be totally lost without Claire House”
For Karina and Jason, having a disabled son turned them from first-time parents into full-time...