Together for Short Lives
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The Expert Parent Programme: Complex Health Needs and Transition to Adulthood

26 January - 9 February 2021, 10:00am - 12:30pm
Together for Short Lives with parent facilitators
  • Are you the parent or family member of young person who has a life limiting or life threatening condition?
  • Would you like to understand more about your family’s rights and how the health and care system works when moving from children’s to adult services?
  • Do you feel as if you are always having to concentrate on your child’s needs, illness or condition rather than who they really are as a person, and what they want out of life?
  • Would you like to increase your confidence when meeting professionals, and be able to make the best of your time with them?

This workshop is aimed at the parents and adult family members of children or young people aged 14+.

Numbers are limited and the full workshop will take place over two sessions – from 10am-12.30pm on 26 January and 9 February 2022.

This workshop was developed through the Council for Disabled Children’s Expert Parent Programme and is funded by Together for Short Lives’ Improving Transitions for Young People Fund. It is written by parents and delivered by specialist parent trainers with lived experience who are approved by The Council for Disabled Children.

Previous participants said:

“I learned more in this than the whole 19 years of my son’s life”

“I understand so much more about my son’s rights”

“I’m going to make the phone calls I’ve been putting off”


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