Great news for children’s hospices across the UK as Morrisons reveal they have raised £486,170 in one fundraising event for our partnership, taking the partnership fundraising to over £6 million! The Butterfly Trail saw colleagues at over 500 Morrisons stores and sites welcome the Together for Short Lives butterfly for a special nationwide relay event with the aim to each...
If your child would benefit from specialist equipment or other aids, these should be identified at their assessment meeting. These may be led by health, social services or another children’s services team who can inform you about the options available to meet your child’s need. In some areas, you may have a multi-agency assessment. In each case it is important...
In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy and had developed as expected until the age of three and a half when he started having seizures. Batten disease...
About the Helpline service Are you a parent, carer or professional who looks after or knows a child or young person up to the age of 25 who is expected to have a short life? If you have questions or would like a helping hand, please contact our Helpline free on 0808 8088 100, leave a message and we will...
