It is estimated that there are at least seven million children worldwide, in need of palliative care. The provision of children's palliative care varies greatly between countries and many children and their families are unable to access the services they need.
The International Children’s Palliative Care Network (ICPCN) is a worldwide network of individuals and agencies working with children and young people with life-limiting conditions. The ICPCN’s mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide.
The ICPCN was set up to raise awareness of children’s palliative care, to lobby for the global development of children’s palliative care services, and to enable professionals working in children's palliative care to share expertise, skills and knowledge.
ICPCN’s shares a vision that the total needs of life-limited children and their families should be met, to encompass physical, emotional, social, spiritual and developmental aspects of care.
Together for Short Lives has a long standing relationship with the ICPCN and our Chief Executive, Barbara Gelb, is the Co-Chair of ICPCN.
Together for Short Lives works collaboratively with the ICPCN, sharing resources and information to help the children’s palliative care sector across the globe.
Many children’s palliative care services work in isolation and may find themselves reinventing what has been developed elsewhere. There is also an information gap about what exists and what is happening in other countries, in relation to children’s palliative care.
It is recognised that all children’s palliative care professionals face common experiences, no matter where they are, and there will be opportunities for sharing information and providing support, as well as opportunities for mutual learning.
For more information, visit the ICPCN website.