Together for Short Lives is here to listen and speak up for those whose voices are not heard or are simply ignored. We want to amplify the concerns of children and young people with life-shortening conditions and their families; and those who support them, so that policy makers deliver better and more engaged services informed by their needs.
Our work aims to ensure that:
- every child has access to children’s palliative care in the setting of their or their family’s choice and whenever they need it - 24 hours a day, seven days a week
- every child - and their family - has access to palliative care services, including children’s hospices, which are sustainable and fairly funded.
- every child - and their family - gets a short break if they need one
- services are more integrated around the needs of children and their families
- every young person has a smooth transition from children’s to adult’s palliative care services - and can access age-appropriate services
- services which provide palliative care to children - including children’s hospices - are regulated fairly and proportionately
- there are sufficient numbers of skilled, competent professionals who are able to care for children with complex and life-shortening conditions
- support to families of children who die with life-shortening conditions is improved
- families receive help from the state to help mitigate the financial impact of caring for a child.
To find our more read out regular policy insight blog.
Care around the clock
24/7 children's palliative care can improve outcomes for children and families and help reduce unplanned, unnecessary and expensive emergency hospital admissions.
Commissioning map of children's palliative care
Together for Short Lives has published maps which show, for the first time, how well palliative care for children and young people with life-shortening conditions is being planned and funded by the NHS and local authorities in England.
As the voice for children's palliative care Together for Short Lives influences policy across the UK, speaking up for children with life-threatening and life-limiting conditions, their families and the services that support them. Here, we detail some of the recent consultations you've helped us respond to and current consultations.
The Children and Young People Health Outcomes Forum
This is an independent forum set up by the UK government to advise on how health outcomes could be improved for children and young people in England.
Funding children’s palliative care
Together for Short Lives wants to see a fair and transparent funding system which delivers for children and families and secures sustainable and consistent funding for those providing palliative care, including children’s hospices.
Commissioning children’s palliative care in England
In England, NHS clinical commissioning groups (CCGs) and local authorities should work together to commission palliative care for children with life-threatening and life-limiting conditions.
Special Educational Needs and Disability (SEND)
Assessments, planning and services for children with SEN and disability in England are changing.
Influencing policy in Northern Ireland, Scotland and Wales
The majority of public policy relating to children who need palliative care in Northern Ireland, Scotland and Wales is devolved.