Together for Short Lives is the authoritative voice for children’s palliative care. We use this voice to influence policy across the UK, speaking up for children with life-threatening and life-limiting conditions, their families and services which do so much to support them.
Our lobbying and policy work helps to ensure that:
- Children and families get the best care and support
- Support for families is better integrated so they have more time together
- Funding for services is fair and sustainable for the future
Members of Together for Short Lives are kept up to date by our regular newsletter Policy Matters. We produce regular policy briefings and respond to consultations run by the UK and devolved governments and other public bodies. We also submit evidence to parliamentary inquiries. Some of our policy documents such as meeting notes and presentations are available to Together for Short Lives members in the members' area of this website.
We are currently focused on influencing the following policy areas below:
Children and Young People Health Outcomes Strategy
The Secretary of State has established an independent Forum to develop a health outcomes strategy for children and young people.
Funding children’s palliative care
Together for Short Lives wants to see a fair and transparent funding system which delivers for children and families and secures sustainable and consistent funding for those providing palliative care, including children’s hospices.
Commissioning children’s palliative care in England
In England, NHS clinical commissioning groups (CCGs) and local authorities should work together to commission palliative care for children with life-threatening and life-limiting conditions.
Special Educational Needs and Disability (SEND)
Assessments, planning and services for children with SEN and disability in England are changing.
Influencing policy in Northern Ireland, Scotland and Wales
The majority of public policy relating to children who need palliative care in Northern Ireland, Scotland and Wales is devolved.