Informing policy

Together for Short Lives is here to listen and speak up for those whose voices are not heard or are simply ignored. We want to amplify the concerns of children and young people with life-shortening conditions and their families; and those who support them, so that policy makers deliver better and more engaged services informed by their needs. 

 Our work aims to ensure that:

  • every child has access to children’s palliative care in the setting of their or their family’s choice and whenever they need it - 24 hours a day, seven days a week
  • every child - and their family - has access to palliative care services, including children’s hospices, which are sustainable and fairly funded.
  • every child - and their family - gets a short break if they need one
  • services are more integrated around the needs of children and their families
  • every young person has a smooth transition from children’s to adult’s palliative care services - and can access age-appropriate services
  • services which provide palliative care to children - including children’s hospices - are regulated fairly and proportionately
  • there are sufficient numbers of skilled, competent professionals who are able to care for children with complex and life-shortening conditions
  • support to families of children who die with life-shortening conditions is improved
  • families receive help from the state to help mitigate the financial impact of caring for a child.

To find our more read out regular policy insight blog.