Funding children’s palliative care

Together for Short Lives wants to see a fair and transparent funding system which delivers for children and families and secures sustainable and consistent funding for those providing palliative care, including children’s hospices.

An Independent Palliative Care Funding Review published its final report in June 2011. Its main recommendation was for a new tariff to fund palliative care, based on health needs, regardless of where the care is given. A series of pilots have been set up to collect data so that the tariff can be developed.

Together for Short Lives is:

  • Influencing the funding pilots so that the right data and information is collected and the tariff reflects the nature of children’s palliative care.
  • Working to ensure that the pilot sites are supported and the wider sector is involved in developing and testing the new system.
  • Working to ensure that any new system is fully tested so that it delivers real benefit to children’s palliative care.
  • Lobbying to maintain sustainability funding through the transition, including the £10 million a year for children’s hospices, so that it continues to meet any shortfall.