Children and Young People Health Outcomes Strategy

In January 2012, Rt Hon Andrew Lansley MP, the previous Secretary of State for Health in England, established the first Children and Young People’s Health Outcomes Forum. The forum was tasked with developing a Children and Young People’s Health Outcomes Strategy for the NHS in England.  

The work of the Forum has been wide-ranging, embracing all of children and young people’s healthcare across all ages.  The final report of the Forum looks at indicators to improve the health outcomes of all children and the systems and structures needed within the NHS to achieve them. 

The Forum report contains four recommendations for new cross-cutting outcome indicators which have potential implications for children’s palliative care:

  1. Time from first NHS presentation to diagnosis or start of treatment
  2. Integrated care
  3. Effective transition from children’s to adult services
  4. Age-appropriate services with particular reference to teenagers

There are two specific recommendations for new outcomes to improve care for children and young people requiring palliative and end of life care.

  • Within the NHS Outcomes Framework it is recommend that there is a new outcome measure to improve the experience of care for children and young people at the end of their lives
  • Within the Commissioning framework it is recommended that data is collected on the numbers of children and young people with end of life plans who die in the place of their choice

Rt Hon Jeremy Hunt MP, the current Secretary of State, considered the reports and published a pledge and system-wide response in February 2013. This has fed into the Mandate for the Commissioning Board, the NHS Outcomes Framework and the Clinical Commissioning Group Outcomes Indicator Set. He announced that a second Children and Young People’s Health Outcomes Forum would be set up.

Together for Short Lives:

  • Is a member of the second Children and Young People’s Health Outcomes Forum, having also been represented on the first.
  • Is continuing to work with key partners to influence the Secretary of State’s thinking around how to take forward the recommendations.
  • Keeping members informed.