The Children and Young People Health Outcomes Forum

In January 2012, Rt Hon Andrew Lansley MP, the previous Secretary of State for Health in England, established the first Children and Young People’s Health Outcomes Forum (CYPHOF). The CYPHOF was tasked with developing a children and young people’s health outcomes strategy for the NHS in England.  

The work of the CYPHOF has been wide-ranging, embracing all of children and young people’s healthcare across all ages. Its first report looked at indicators to improve the health outcomes of all children and the systems and structures needed within the NHS to achieve them. 

This report contained four recommendations for new cross-cutting outcome indicators which have potential implications for children’s palliative care:

  1. Time from first NHS presentation to diagnosis or start of treatment
  2. Integrated care
  3. Effective transition from children’s to adult services
  4. Age-appropriate services with particular reference to teenagers

There were also two specific recommendations for new outcomes to improve care for children and young people requiring palliative and end of life care.

  • Within the NHS Outcomes Framework it is recommend that there is a new outcome measure to improve the experience of care for children and young people at the end of their lives
  • Within the commissioning framework it is recommended that data is collected on the numbers of children and young people with end of life plans who die in the place of their choice

Rt Hon Jeremy Hunt MP, the current Secretary of State, considered the reports and published a pledge and system-wide response in February 2013. This has fed into the government's mandate to NHS England, the NHS Outcomes Framework and the Clinical Commissioning Group Outcomes Indicator Set. He announced that a second CYPHOF would be set up.

The CYPHOF has continued to meet regularly and has produced two further annual reports and submissions to inform the government's refresh of its mandates to the NHS and to Health Education England. It also submitted a response to the Francis inquiry. In its 2014/15 report, the CYPHOF called on the next government to develop and implement a children’s health strategy after the 2015 general election. You can read the CYPHOF's terms of reference and all the publications produced by the forum here

Together for Short Lives:

  • Is, through our chief executive Barbara Gelb OBE, a member of the second CYPHOF, having also been represented on the first.
  • Is continuing to work with key partners to press for the CYPHOF's recommendations to be implemented.
  • Keeping members informed.