Finding out that your child has a life-limiting or life-threatening condition can be an incredibly distressing and confusing time. We often hear from families that they fail to get the information they need about what help and support is available locally. We want to address this and have developed a range of resources to support you and to help you get the most of your local services and enjoy your time together as a family.
Each family is unique and everyone's journey will be different. This section gives you information and advice to help you every step of the way
Having access to the right kind of information can really help you feel in control of your child's care and give you confidence to make choices
Your questions answered
Browse our list of questions that we are often asked by parents and find the answers you are looking for