Talking with your child about their life-limiting condition

Coming to terms with the news that your child has a life-limiting or life-threatening medical condition is extraordinarily difficult. If the diagnosis was made recently you may find that things feel overwhelming at the moment. You may be worried about what the future holds for your child and how you can help them to live as happy and "normal" a life as possible. Many parents wish to hold off from telling their child about the prognosis/diagnosis for as long as possible, as they feel that by doing so they are protecting their child. This leaflet offers some suggestions about why it is likely to be useful to begin having these conversations early with your child and how you might go about doing so. It aims to offer you some practical advice about how to do this and address some common worries and concerns parents have.

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