The Transition Taskforce works to influence policy at national and local levels so that it helps to bring about smoother transitions and age-appropriate care for young people.
We work closely with the Preparing for Adulthood Programme (PfA) to try to improve outcomes for young people with life-limiting conditions.
So far, we have:
- worked with Every Disabled Child Matters (EDCM) and other partners in England to press for the Care Bill to be strengthened; this is now the Care Act 2014 and includes duties on local authorities to assess and plan the future social care which young people are likely to need before they reach adulthood
- helped advise the Department of Health as it has developed statutory guidance to help local authorities implement the transition clauses in the Care Act 2014 (see pages 307 - 325)
- produced a guide for clinical commissioning groups (CCGs) in England to help them commission smooth transitions and age-appropriate care for young people who need palliative care
- helped our young ambassadors to address MPs and peers at a House of Commons reception in November 2013. Our young ambassadors spoke about their experiences of living with a life-limiting condition as Together for Short Lives launched its eight policy priorities for the next Parliament.
- been a member of a Care Quality Commission's (CQC) advisory panel which informed its review of transition for young people with complex health care needs.
Securing a sustainable source of funding
We are currently developing a three-year plan for the development of the Transition Taskforce and are looking at models to sustainably fund the development of services to support young people with life-limiting conditions - in all aspects of their lives.
As part of this, we will be exploring how personal health budgets can be used to best effect for young people with life-limiting conditions.