The West Midlands Children and Young People’s Paediatric Palliative Care Network


This network meets on a quarterly basis and membership is open to any interested practitioners working in the local area.

This network covers Birmingham and the Black Country; Shropshire; Staffordshire; Warwickshire; Herefordshire and Worcestershire.

The predecessor to this Group was hosted by the Pan Birmingham Palliative Care Network and was tasked by the West Midlands Paediatric Oncology Supra Network Group, to produce a model and recommendations for paediatric palliative care across the West Midlands. This work, based on a regional gap analysis, has now been completed, and the focus of the group has changed to strategic implementation of the objectives set out in the Department of Health’s “Better Care: Better Lives” publication, in order to best address gaps identified in the analysis.

The objectives of the Group are:

  • To advocate for children and young people with life-shortening conditions and their families, and encourage the involvement of local service users in service development
  • To collect data about palliative care needs and provision in the West Midlands Region, including collection of the Paediatric Palliative Care Minimum Dataset and progress made in addressing gaps identified in the recent gap analysis
  • To inform commissioning strategy for the development of paediatric palliative care services with reference to regional data, national best practice standards and to documents and guidance listed below. This will be delivered via membership of the Regional Commissioning group
  • To improve care pathways across statutory and voluntary sectors, including transition of young people into adult services, with reference to Together for Short Lives care pathways standards.
  • To facilitate commissioner and provider cooperation within the PCT clusters identified in the regional gap analysis
  • To maintain the link with the West Midlands Paediatric Oncology Supra - Network Group and develop links with other relevant groups such as the Neonatal networks
  • To work towards the establishment of a regional managed clinical network for paediatric palliative care
  • To contribute to training and workforce initiatives
  • To raise public and professional awareness of paediatric palliative care.

The network produced the West Midlands Toolkit which provides a comprehensive range of documents and tools for children’s palliative care.

For more details contact: jane.houghton@togetherforshortlives.org.uk