Webinar: Growing numbers, changing needs (September 2020)

The prevalence of life-limiting and life-threatening conditions in children is rising, but what are the practical implications for children’s palliative care services in the future?

Growing numbers, changing needs:

What this means in practice for our work across children’s palliative care

Programme

• Make every child count. Key findings from new research into the prevalence of life-limiting and life-threatening conditions in children including an update on the regional data summary.
  Professor Lorna Fraser, Director of the Martin House Research Centre, NIHR Fellow and Senior Lecturer at the University of York.
• A new economic model for 24-hour end of life care for children at home.
  Professor Jane Noyes, Professor in Health and Social Services Research and Child Health, Bangor University.
  Professor Rhiannon Tudor Edwards, Professor of Health Economics and Co-Director of the Centre for Health Economics and Medicines evaluation (CHEME), Bangor University.
• What the rising prevalence of life-limiting and life-threatening conditions in children means in practice.
  Dr Lisa Kauffmann, Consultant Paediatrician and Clinical Director of Children’s Community Services, Central Manchester University Hospitals NHS Foundation Trust.
• Increasing needs and the interaction between PICU and hospice.
  Jan Sutherland-Oakes, Director of Clinical Services, Claire House Children’s Hospice.

Learning objectives

By the end of this session, participants will have up to date information about the rising prevalence of life-limiting and life-threatening conditions in children and understand some of the practical implications for children’s palliative care services in the future.

This series of webinars is based on the key sessions that were due to take place at Together for Short Lives’ cancelled 2020 conference, Time for Change? A new vision for children’s palliative care. This session was recorded on 23 September 2020.