An advance care plan is a way of documenting your wishes and choices for your child’s care. It’s an open conversation with your medical professionals about what might be possible, which centres around your child’s comfort and includes your thoughts, hopes, ideas and planning for the end of their life.
This online workshop for parents will be facilitated by Dr Helena Dunbar, who is the Director of Service Development and Improvement at Together for Short Lives. Helena is an experienced children’s nurse with 30 years in practice. Helena was Associate Professor of Teaching and Learning and Head of Division at De Montfort University’s Leicester School of Nursing and Midwifery, where she has led the design and delivery of teaching and learning in children’s/adult nursing for the last eight years.
This workshop is for
Parents of children with life-limiting conditions who want to know what goes into an advance care plan. There’ll also be a chance to talk to other parents about their experiences and hopes for the future.
What participants will gain
It will give parents an insight into what an advance care plan is and the process in creating one.
You might also find it helpful to watch this video featuring parents’ perspectives on end of life care planning for their children.