When temperatures climb, caring for a seriously ill child can feel even more challenging. Hot weather can affect children differently depending on their condition, medications, or the equipment they rely on. As an experienced children’s nurse, I appreciate how concerning this can be for parents and carers and wanted to share some tips for helping your child stay as comfortable and safe as possible this summer.
Keeping cool at home
Try to spend time in the coolest room in your home, and keep curtains or blinds closed during the hottest part of the day (usually between 11am and 3pm). Opening windows early in the morning or later in the evening can help bring in fresher, cooler air.
Fans can help circulate air, but it’s best not to point them directly at your child, especially babies and children with complex needs. Even small adjustments like repositioning beds or chairs away from direct sunlight can help reduce heat exposure.
Staying hydrated and self care
During a heatwave, hydration is especially important. Children who have additional needs or are otherwise poorly will often need extra fluids, but this can vary depending on their condition. If you’re unsure, your clinical team can give personalised guidance. Keeping clothing light, loose, and breathable can also help your child stay comfortable.
You might also want to ask your healthcare team whether gentle cooling techniques, like lukewarm washes, are suitable for your child. Keeping up with personal care and hygiene can help avoid further discomfort developing during hot weather.
And equally importantly, don’t forget self care. Ensuring that you keep cool and hydrated is vital to you continuing to be able to do the best to care for your child.
Close monitoring
Regularly checking on your child (and others in your household) is really important during a heatwave. If you notice anything concerning, such as changes in behaviour, signs of overheating or altered responses to medication, it’s always best to seek advice from a trained medical professional who knows your child.
Being aware of the signs of heat exhaustion and heatstroke can also help you act quickly if needed. The NHS provides clear guidance on what to look out for and when to seek urgent help.
Looking after medication and equipment
Heat can affect how medications and medical equipment work. Try to store medicines in a cool, dry place (generally between 5–25°C) and keep them out of direct sunlight. Some items, like inhalers or auto-injector, can become less effective if they get too hot.
If your child uses medical equipment, it’s worth checking that everything is fully charged. Heatwaves can sometimes increase the risk of power cuts, so ensure your backup batteries are also ready for use, if you have some. Signing up to the ‘Priority Services Register’ can ensure help arrives quickly if utility services are disrupted – find out how here.
Planning ahead for travel
If you need to travel, a little extra preparation can help things go smoothly. Air-conditioned transport is ideal where possible, and parking in shaded areas can help keep temperatures down. Bringing extra water or feeds, along with any equipment your child may need, can help you feel more prepared, especially if there are delays.
Medications and items that need to stay cool can be transported in insulated or cool bags. If your child uses equipment that requires water (such as humidification devices), consider taking additional supplies in case of break down or sitting in traffic.
Further guidance
Your specialist healthcare teams are always the best source of advice for your child’s specific needs. But if you simply need a listening year or some non-urgent advice, please remember that our helpline team are here to help. Just ring 0808 8088 100 and leave a message or email helpline@togetherforshortlives.org.uk to get in touch.
About the author
Jess is an experienced children’s nurse with 23 years clinical experience across a range of acute clinical settings and specialities followed by the latter 16 years as Community Children’s Nurse (CCN) and Lead CCN at University Hospital Bristol NHS Foundation Trust. Find out more here.
