News and Comment

As a mother who lost both of her daughters 21 and 19 years ago now, every day is hard. As the years have passed that awful raw agonising pain has eased somewhat, but missing them gets harder. Always wondering what...

Mother’s Day, a time to sit back and be spoilt by your glorious offspring, your pride and joy. A day to reflect on how much love you have for them and how much they bring to your life every second...

“I can’t find it.” “Where did you last see it?” “I can’t remember, I hid it away as it was too painful, but now I want it back. It was my first Mother’s Day card from Essie.” My husband walked...

Together for Short Lives is disappointed that Chancellor Rishi Sunak has failed to prioritise a funded plan to help seriously ill children and their families recover from the devastating impact of the COVID pandemic. As we set out in our...

New research published today (25 February 2021) shows that the number of young adults with life-limiting conditions has risen significantly over the last eight years.

During these crazy times of lockdown and Covid, we have all spent much more time at home. We have been extra careful not to touch anything whilst we are out, not to hug or get close to others especially if...