News and Comment

There are 49,000 children and young people in the UK living with a life-shortening condition – and the number is rising. The impact on families caring for a seriously ill child can be enormous, with an estimated 100,000 parents and...

Together for Short Lives, the UK charity for children with life-shortening conditions, is calling on the parties in the Scottish Parliament to commit to better palliative care for children in their upcoming election manifestos. There are estimated to be over...

Leading UK children’s charity Together for Short Lives has partnered with children’s palliative care professionals and providers including Tŷ Hafan and Hope House to call for the next Welsh Government to maintain the momentum already achieved in improving the provision...

During a debate on end of life care in the House of Commons on 2nd March, several MPs called for children and young people to be given choice at the end of their lives. In response, a minister said he would...

Samantha Cameron last night (1 March) hosted a reception on our behalf at No. 10 Downing Street. The event helped to raise awareness of the needs of the UK’s 49,000 children and young people living with a life-shortening condition. Mum,...

Last night I was honoured to speak at an event at 10 Downing Street about the experience of raising my son James. James has Infantile Batten Disease – a neurological degenerative condition. There is no treatment, and no cure. James...