News and Comment

Leading UK children’s charity Together for Short Lives has partnered with children’s palliative care professionals and providers including Tŷ Hafan and Hope House to call for the next Welsh Government to maintain the momentum already achieved in improving the provision...

During a debate on end of life care in the House of Commons on 2nd March, several MPs called for children and young people to be given choice at the end of their lives. In response, a minister said he would...

Samantha Cameron last night (1 March) hosted a reception on our behalf at No. 10 Downing Street. The event helped to raise awareness of the needs of the UK’s 49,000 children and young people living with a life-shortening condition. Mum,...

Last night I was honoured to speak at an event at 10 Downing Street about the experience of raising my son James. James has Infantile Batten Disease – a neurological degenerative condition. There is no treatment, and no cure. James...

In Northern Ireland alone, there are currently estimated to be 1,300 children and young people living with life-shortening conditions. Many of these children have extremely complex and unpredictable conditions, requiring round the clock care, seven days a week. Northern Ireland...

A shortage of nurses has resulted in two thirds of voluntary sector children’s palliative care services reducing their offer of care to families. This is resulting in reduced care for families such as: fewer available beds in children’s hospices; a...