24/7 end of life care for children #EveryDayEveryNight
Seriously ill children face a postcode lottery for end of life care. Time is running out for these families, so please act now to help give all children and families in England access to end of life care.
Our new report reveals that seriously ill children and their families across England face a postcode lottery when trying to access end of life care at home at night, at weekends and on bank holidays.
We are calling on the government to ensure that all seriously ill children have access to 24/7 care for children, for whom time is short. But we need your help too.
Sign Claire’s open letter to the Prime Minister
When Claire’s son George received a terminal diagnosis of Batten Disease in 2017 she relied on the 24/7 support of her local palliative care team. The support helped George and his family enjoy the best quality of life they could with the time they had, and Claire will be forever grateful for the support she received. But in many areas of England families in the same position don’t get the same support, so Claire has written to the Prime Minister to ask him to ensure that families of seriously ill children get the support needed. Please add your name to the letter below, and share this page using #EveryDayEveryNight.
Read Claire's full letter to Boris Johnson
Sign Claire's letter
Hear from families
What does it means to have 24/7 palliative support? What happens when the 24/7 palliative support isn’t there?
Our new 24/7 report highlights:
Can you do more to help?
You can write to your local MP now to highlight the situation in your area and ask them to take action in Parliament. Find your MP here.
Or you can make a donation to support our work – families that can’t access care #everydayeverynight are suffering and they’re suffering alone. Please help us make sure they can get the vital care they need.