Together for Short Lives
Call the Helpline 0808 8088 100

News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre.

"life limiting" tag

We have to fight for everything

Date Posted
14 July, 2016
Author
Onessa Carlazo

Being nurses couldn’t prepare us for being told our son Elijah had myotubular myopathy and was expected to live only a few weeks. We tried for five years for a baby before Elijah was conceived but when he was born...

Updated Symptom Control Manual published

Date Posted
26 April, 2016

A new edition of Basic Symptom Control in Paediatric Palliative Care – the Rainbows Children’s Hospice Guidelines is launched today. The Basic Symptom Control Manual (9.5 edition) is a unique resource, bringing together all symptom management for babies, children and young people and providing...

E-bulletin

Sign up to our e-bulletin to keep in touch with our latest news