Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

"life limiting" tag

We have to fight for everything

Date Posted
14 July, 2016
Onessa Carlazo

Being nurses couldn’t prepare us for being told our son Elijah had myotubular myopathy and was expected to live only a few weeks. We tried for five years for a baby before Elijah was conceived but when he was born...

Updated Symptom Control Manual published

Date Posted
26 April, 2016

A new edition of Basic Symptom Control in Paediatric Palliative Care – the Rainbows Children’s Hospice Guidelines is launched today. The Basic Symptom Control Manual (9.5 edition) is a unique resource, bringing together all symptom management for babies, children and young people and providing...


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