By acting together we have a stronger collective voice.
We are recognised across the UK as the leading lobbying and campaigning organisation for the children’s palliative care sector. We provide a collective voice to raise awareness of the needs of children and young people with life-threatening and life-limiting conditions and their families.
We work with a variety of lobbying and campaigning groups to ensure that approaches to palliative care across the UK are as consistent as possible. These include:
Children England is the leading membership organisation for children, young people and families within the voluntary sector.
Contact a Family
Contact a Family are a national charity providing advice, information and support for any family with a disabled child, whatever the child’s condition.
Council for Disabled Children
The Council for Disabled Children (CDC) is the umbrella body for the disabled children's sector in England, with links to other UK nations.
Hospice UK is the UK charity supporting hospices and championing hospice care.
International Children’s Palliative Care Network (ICPCN)
The International Children’s Palliative Care Network (ICPCN) is a worldwide network of individuals and agencies working with children and young people with life-limiting conditions.
Marie Curie Cancer Care
Marie Curie Cancer Care provides care for terminally ill patients. They have a network of 2,000 nurses who work in the homes of terminally ill patients across the UK, providing practical care and support.
National Council for Child Health and Wellbeing
The National Council for Child Health and Wellbeing brings together professional groups concerned with the health and welfare of children and young people across the UK.
National Council for Palliative Care and Dying Matters coalition
Together for Short Lives is a member of the Dying Matters coalition, led by the National Council for Palliative Care which works to support changing knowledge, attitudes and behaviours towards death, dying and bereavement.
Preparing for Adulthood
This partnership brings together a wide range of expertise and experience of working with young people and families at a local and national level and across government, to support young people into adulthood.
The Association for Paediatric Palliative Medicine
The APPM represents doctors working in paediatric palliative care across all care settings in the UK. This includes both paediatricians with an interest in paediatric palliative medicine and other doctors, particularly GPs with a specialist interest, many of whom are working in children's hospices.