Together for Short Lives
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Family stories

49,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.

Lisa’s Story: Julia’s House saved my marriage 

Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest child, Kitty, eight, has Kabuki Syndrome, a rare genetic disorder that affects her muscle tone and mobility. She also suffers repeated infections and kidney problems that need...