Together for Short Lives will be working on a series of pilot programmes across the UK between late 2015 and 2017.
The details are currently being finalised but please contact Katrina McNamara to find out if there is a pilot project near you. If there is not a pilot project in your area we will still be able to offer support and advice.
Pilots will work locally through partners to raise awareness of the needs of local children and young people with life-shortening conditions and their families. We will be working closely with national programmes such as Dying Matters; Good Life, Good Death, Good Grief; and Byw Nawr to challenge myths and fears surrounding dying and death, and encourage people to see it as a challenge that is overwhelming when encountered alone, but manageable when shared.
If you would like to share your examples of community engagement and best practice please email Katrina McNamara.