Helping support families
Giving families, children and young people support every step of the way
We are here to make sure that the 49,000 seriously ill children and their families across the UK can make the most of every moment they have together,
whether that’s for years, months or only hours.
We are aware that the coronavirus (COVID-19) outbreak is a time of concern for everyone, but especially so if you are a parent carer of a baby, child or young person who has complex health needs. Our helpline is available for families who have practical concerns. Call 0808 8088 100
We have been receiving a number of calls to our Helpline about coronavirus and have put together a Q&A with practical answers to some of the questions that we have been asked. If you do have medical symptoms though, please do contact 111.
If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.
We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.
Please give your money, your time or your voice, and help us change lives. Together we can make a lifetime of difference for seriously ill children, helping every family to make the most of every moment they have together, whether that’s for years, months or only hours.
No family should face the heart-break of knowing their child will die young alone. Families don’t know what the future may hold and can feel isolated and lonely. Your support can allow us to help families like the Hadmans, who lost their daughter Effie to Late Infantile Batten disease when she was just six. “Together for Short Lives was there for us, when we felt lost,” says her mum Carly.