Contact our helpline service by phone, live chat or email for advice and support
The impact of COVID-19 is pushing families caring for a seriously ill child to breaking point at this frightening and lonely time. If you need help or advice, or just someone to talk to, our helpline and family support hub is here for you.
When a child’s life is expected to be short, Together for Short Lives is here to make sure they can make the most of every moment they have together, whether that’s for years, months or only hours. 2020 was an extraordinary year for all of us. Our Impact Report demonstrates how we rose to the challenges of a year like no other.
Covid-19 meant that children like six year old Freddie, who has a rare genetic condition, were forced to shield early, impacting upon family finances. In response we opened a special Emergency Relief Fund – a one-off £200 cash grant for families. Freddie’s mum Lottie used the money to buy books to stimulate Freddie through lockdown.
If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.
We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.
Please give your money, your time or your voice, and help us change lives. Together we will make a lifetime of difference for children with short lives, helping every family get the very best care and support, every step of their journey – no matter how short.
For families like Alfie’s every moment counts. This year Kieron, Louise and daughter Mila Rose will be making Christmas extra special, as they don’t know how many more they’ll have left with Alfie. Find out how your support can make a difference.