Together for Short Lives
Call the Helpline 0808 8088 100

Helping families caring for a seriously ill child make the most of every moment together

Visit our family support hub

The impact of COVID-19 is pushing families caring for a seriously ill child to breaking point at this frightening and lonely time. If you need help or advice, or just someone to talk to, our helpline and family support hub is here for you.

How we make a difference

Pushed to the Limits

Caring round the clock for a child with serious health needs can be exhausting and at times families can feel pushed to their limits. Many families rely on lifeline support from their local children’s hospice, but children’s hospices are struggling to raise the funds they need to care for growing numbers of seriously ill children. We’re here to make sure that children’s hospices are never pushed to their limits.

Tehya’s Story: ‘Eating Spaghetti Bolognese at 5am’

Seriously ill Tehya can be awake at all hours of the day or night: “The other night we were up eating spaghetti bolognese at 5am” Her  24/7 caring schedule would leave mum, Tammy feeling pushed to limits without Julias House’s “total support network.” There are no limits to what Julia’s House will do for families like Tehya’s.

Tehya

We are here if you need support

If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.

Call us on 0808 8088 100

We are here to support professionals caring for seriously ill children, young people and families

We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.

We need your help

Please give your money, your time or your voice, and help us change lives. Together we will make a lifetime of difference for children with short lives, helping every family get the very best care and support, every step of their journey – no matter how short.

Helping us get the best out of life

Two-year-old Elijah is unable to walk, talk or see, making ‘normal’ family life a challenge. For Children’s Hospice Week his mum shared what an incredible impact their local service makes on their lives, as “somewhere where you don’t have to worry about fitting in.”

View all the challenge events