Together for Short Lives
Call the Helpline 0808 8088 100

When Kacper died, his parents wanted to focus on saying goodbye without worrying about money

Butterfly Fund logo Butterfly fund logo

The impact of COVID-19 is pushing families caring for a seriously ill child to breaking point at this frightening and lonely time. If you need help or advice, or just someone to talk to, our helpline and family support hub is here for you.

How we make a difference

Introducing the Together for Short Lives Butterfly Fund

When a child dies, their family should have the time and space they need to grieve, not be faced with financial pressures and stress. We have developed our new Butterfly Fund to offer  a one off grant of £300 to offer a helping hand to bereaved families. Find out more about the Butterfly Fund and how to apply.

"Kacper dreamed of wearing a suit"

When Kacper died, his parents wanted to focus on saying goodbye without being forced to worry about money. After receiving a grant of £300 Kacper’s family used the money to pay for the suit he wanted at his funeral. “He dreamed of a suit with a waistcoat. I bought one for him thanks to your help. I hope he liked it.”

Kacper with his cat

We are here if you need support

If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.

Call us on 0808 8088 100

We are here to support professionals caring for seriously ill children, young people and families

We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.

We need your help

Please give your money, your time or your voice, and help us change lives. Together we will make a lifetime of difference for children with short lives, helping every family get the very best care and support, every step of their journey – no matter how short.

Every moment counts

For families like Alfie’s every moment counts. This year Kieron, Louise and daughter Mila Rose will be making Christmas extra special, as they don’t know how many more they’ll have left with Alfie. Find out how your support can make a difference.

Alfie Sales

View all the challenge events