Contact our helpline service by phone, live chat or email for advice and support
If you are caring for a child with a serious illness and need help or advice, or just someone to talk to, our helpline and family support hub is here for you.
Seriously ill children face a postcode lottery for end of life care. Time is running out for these families, so please act now to help give all children and families in England access to end of life care.
When George received a terminal diagnosis of Batten Disease in 2017 his family relied on the 24/7 support of her local palliative care team which helped them enjoy the best quality of life they could. But in many areas of England families don’t get the same support so mum Claire has written to the Prime Minister to ask him to ensure that families of seriously ill children get the support needed.
If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.
We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.
Please give your money, your time or your voice, and help us change lives. Together we will make a lifetime of difference for children with short lives, helping every family get the very best care and support, every step of their journey – no matter how short.
Two-year-old Elijah is unable to walk, talk or see, making ‘normal’ family life a challenge. For Children’s Hospice Week his mum shared what an incredible impact their local service makes on their lives, as “somewhere where you don’t have to worry about fitting in.”