Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre.

This is . . . Respite During a Pandemic – Havens Hospices uses Tech to Talk 

Date Posted
26 June, 2020

Havens Hospices is using technology to helping them to continue caring during the Coronavirus. Providing ‘socially-distant’ palliative and supportive care during the pandemic hasn’t been easy, but is creating ‘creative opportunities’ to still provide a level of respite for patients...

This is…Emma’s story

Date Posted
25 June, 2020

Stanley suffered from a rare genetic condition called Tay Sachs. Diagnosed at just 14 months old, he very quickly developed complex symptoms including frightening seizures. Stanley’s care needs were huge – his family looked after him around-the-clock, a daunting prospect...

Forgotten families: Families feel more isolated than ever under lockdown

Date Posted
25 June, 2020

Covid 19 has made an already difficult, isolating situation considerably harder. Our new study, launched in Children’s Hospice Week, in collaboration with Martin House Research Centre and the University of Southampton reveals that most families caring for a child with...

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