News and Comment

Rachel Thompson, mum to Frank, talks candidly about the impact of Covid-19 on her family, their fears and what it means for caring for a child with a life-limiting condition. Rachel’s blog, where she shares her thoughts on how Covid-19...

The Good Grief Project presents a lockdown conversation between bereaved mothers Jane Harris and Lizzie Pickering about the world they find themselves in following the outbreak of COVID-19.

We lost our boy six months before lockdown began. Bertie was 4 years old and had gone through a terrible neurological degenerative disease called Batten Disease, which saw him loose the ability to walk, hold his head up, to swallow...

32 year old Rhys Bowler has shared his isolation diary with us, to help others grappling with issues raised by COVID-19 and beyond. In the following extracts we share with you some of his brilliant insights, irreverent sense of humour...

Foodbuy, a leading food procurement business, is donating over 1,400 essential care boxes to families with seriously ill children, to support them during the Coronavirus pandemic. Foodbuy has teamed up with Together for Short Lives, the UK charity that is...

A new research study released today (23 April 2020) shows that the number of children in England with life-limiting or life-threatening conditions has continued to rise over the last 17 years. The Make Every Child Count study, conducted by the University of...