News and Comment

Hearing the news that your child has a life-limiting condition and is likely to die young is devastating. Not only do families have to cope with the knowledge that their child will die before them, but day-to-day life can become...

Together for Short Lives has welcomed ministers’ plans to offer genome sequencing to people in England with a rare disease from 2019 – and to prioritise investments in preventative healthcare. The news has been set out in a new vision...

We are delighted that the government has listened to calls for more flexible and inclusive terms in parental bereavement leave legislation and today announced that the new Parental Bereavement (Pay and Leave) Act will also entitle primary carers for children...

The Chancellor of the Exchequer has used his Budget 2018 speech this afternoon (29 October) to signal the end of austerity across the UK. However, despite the claims, the Chancellor’s speech has not done enough to ease the financial pressures...

Yesterday, on Thursday 25 October, Demelza Children's Hospice in Kent had a very special visit from our Ambassador - the world-class Magician, and Britain's Got Talent winner - Lance Corporal Richard Jones. Richard spent the afternoon meeting seriously ill children,...

England’s most vulnerable children are unable to access the full range of care and support that the government has committed to, a new report by a cross-party group of MPs and peers has revealed. Babies, children and young-people with life-limiting...