News and Comment

My name is Leah Booth and I am a Young Avenger for Together for Short Lives. I have Spinal Muscular Atrophy Type 2 which mean I need 24/7 care and support. I wanted to write to you regarding the transitions,...

In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...

Today, I am proud to be hosting a Parliamentary reception on behalf of Together for Short Lives – the UK charity which speaks up #forthe49000 children and young people in the UK with life-limiting and life-threatening conditions. The event is...

Together for Short Lives has today called on the Government to accept the recommendations from a cross-party group of MPs to strengthen proposed legislation on Special Educational Needs and Disability (SEND). The Education Select Committee’s report follows its scrutiny of...

Together for Short Lives is so thrilled that Matt Terry is the 2016 X Factor Winner! We loved hearing Matt debuting his winner’s single ‘When Christmas Comes Around’ at the final on Sunday 11 December. This is an original Christmas...

Parliamentarians at Westminster have been continuing to press the Government to ensure that children’s palliative care services in England receive fair, sustainable funding from the NHS and local authorities. On Tuesday (11 December), Sarah Champion, Rotherham’s new MP, used her...