Jack’s story: Hospice care brought our family closer together
Jack, is 10 and has a rare and life-limiting neurological condition called Aicardi-Goutières Syndrome (AGS)....
Family stories
99,000 babies, children and young people are living in the UK with health conditions that are life-shortening or life-threatening - and the number is rising. Meet some of the families we support.
Remembering Liam, and the challenge that inspired a community
“He was just a gorgeous boy. He was always happy. He loved the sound of whistles. He liked watching TV. He just really liked life,” says mum Natasha from Ayrshire in Scotland, remembering her son Liam who died peacefully in...
Samuel’s story: Doctors have helped us plan for the worst, but each day I pray for a miracle
Samuel was born with his entire right pulmonary artery missing – a rare congenital heart...
Children’s Hospice Week 2025: Gaby’s story
Evita’s daughter Gaby was born with half a heart – a rare condition called hypoplastic...
Aidan’s Story: Hospice care was a game changer for our family
Aidan is eight years old and lives with cerebral palsy, epilepsy and severe gut dysmotility....
Dylan’s story: Palliative care gave us choice
When Sarah and Will’s son Dylan was diagnosed with the rare neurodegenerative condition Sandhoff disease...
“Go once with an open mind” is this mum’s advice to other SMA parents wondering if hospice care is right for their child
We’ve been blown away by all the incredible stories of hope and determination that are...
Nieve’s story: “At the end of her life we were alone”
Nieve was born in July of 2007, a happy and content baby, but it quickly...
Archie’s story: “I couldn’t live without their support”
This is Archie’s story, told by his mum, Laura. Archie was born extremely prematurely at...