Logan-Ann’s story: “We have to take it day by day because we don’t know how long we’ll have her for”
At her ten-week scan, doctors told mum-to-be-Emma that they had some concerns over the health...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Tilly’s story: “Together for Short Lives made me feel brave again”
This is Dee’s story Dee is mum to Tilly, who has Rett syndrome. “When Tilly...
Arjun’s story: “We heard one cry, and then he was silent forever”
Told by his mum Manraj... "After Arjun was born he didn’t cry. It was like...
Amber-May’s story: Our fight had just begun
Amber-May had Quadriplegic Cerebral Palsy and complex medical needs throughout her short life. Her mum...
Britt’s story: “I was broken and they put me back together”
Shooting Star Children’s Hospices have been part of Zoë, and her parents, Britt and Adrian’s...
Daisy’s story: “Each day we hope for the best”
"Making decisions when you are in crisis and not able to think rationally is terrifying....
Dylan’s story: “A little life, with a big impact”
“Dylan was always a calm presence, and as first-time parents, it was the happiest time...
Jenson’s story: I hope other families won’t have to wait as long as we have.
On his first birthday, we received the worst news imaginable “Jenson’s crawling was delayed and...