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"Batten Disease" tag

A bewildering array of services

Date Posted
7 February, 2017
Rachel Thompson

In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...


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