Supporting health transitions for young people with life-limiting conditions: researching evidence of positive practice (STEPP)

 

Background

In 2010 the Transition Partnership (a collaboration between Together for Short Lives, Help the Hospices and the National Council for Palliative Care) working alongside a team of academic researchers at the University of York, was awarded funding by the Big Lottery Research Programme to conduct the STEPP Project (Supporting health transitions for young people with life-limiting conditions: researching evidence positive practice). 

What is the research about?

Key findings from the research related to:

  • Who is a young adult and how are young adults with life-limiting conditions different from their peers?
  • Young adults and their parents involvement
  • Early days in the adult clinic
  • Staying on an adult ward
  • Helping young adults deal with uncertainty
  • Conversations around end of life
  • Developing partnerships with palliative care services
  • When a young adult dies – bereavement support for parents

How can I find out more?

Two resources to support best practice have been developed from the findings of the Study: a research briefing and a set of practice prompts.  These are available as free downloads here: 

Practice Prompts

Research Briefing

Together we hope these publications will be useful for all professionals working with young adult patients with significant, and potentially life-limiting, conditions and those with responsibility for supporting the transition from paediatric to adult care.

 Who do I contact for more information?

To find out more information about the research please contact:

Social Policy Research Unit at the University of York:  Bryony.beresford@york.ac.uk

 To enquire about ordering hard copies of the STEPP Project Resources please contact:

Lizzie.chambers@togetherforshortlives.org.uk