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Basic Symptom Control in Paediatric Palliative Care Free DownloadFree
Together for Short Lives
Evaluation of the Strategic Development of Children’s Palliative CareFree
Together for Short Lives work to improve the commissioning of healthcare for children and young people with life-limiting and life-threatening conditions through strong and effective strategic networks. Changes to the NHS means that new approaches to commissioning are needed in order to deliver improved health outcomes for children needing palliative care. This report identifies the potential for networks to influence commissioning, at the same time recognising the need for ongoing network development.
Moving to Adult Services: What to ExpectFree
This guide is for any young person with a life-threatening condition who is thinking about their future as an adult and wanting to consider their options and plan ahead.
Perinatal Pathway for Babies with Palliative Care NeedsFree
The pathway offers professionals clear guidance from the point of recognition that a baby has a life-limiting condition; ongoing care of the baby throughout their short life; end of life planning; and continuing care for the family into bereavement. The pathway is endorsed by BAPM (British Association of Perinatal Medicine), Bliss, the charity for babies born premature or sick and Child Bereavement UK.
A comprehensive list of our resources for professionals and parents. It lists our downloadable and hard copy publications, along with our online newsletters.
Workforce Signpost Guide - Overseas Recruitment of NursesFree
This guide features the experiences of a children’s palliative care organisation that has recruited nurses from overseas, along with some background information and signposting to resources where you can find out more.
Workforce Signpost Guide - Succession PlanningFree
This guide contains contributions from a small group of experts with a national and international perspective, including human resources professionals and leaders of care, higher education and statutory services.
Young Person's Guide to Personal Budgets in EnglandFree
Young Person’s Guide to Personal Budgets in England is designed to help seriously ill young people to have more choice and freedom in how their care is delivered. The e-resource is written for young people who may be considering a personal budget.
Bridging the gap: Strengthening relations between hospices and MuslimsFree
Research into the uptake of UK hospice services by British Muslims, who historically have not tended to use hospice services. The report recommends ways of extending good practice to become more widespread across the palliative care sector.
Jointly commissioning palliative care for children and young peopleFree
This resource is designed to support clinical commissioning groups (CCGs) and local authorities in England to effectively commission palliative care for children and young people aged 0-25. The resource also supports health and wellbeing boards to understand their role in the commissioning process.