Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

This is…Emma’s story

Date Posted
25 June, 2020

Stanley suffered from a rare genetic condition called Tay Sachs. Diagnosed at just 14 months old, he very quickly developed complex symptoms including frightening seizures. Stanley’s care needs were huge – his family looked after him around-the-clock, a daunting prospect...

Forgotten families: Families feel more isolated than ever under lockdown

Date Posted
25 June, 2020

Covid 19 has made an already difficult, isolating situation considerably harder. Our new study, launched in Children’s Hospice Week, in collaboration with Martin House Research Centre and the University of Southampton reveals that most families caring for a child with...

EACH continues to go above & beyond in the Covid-19 Pandemic

Date Posted
23 June, 2020
Author
Tracy Rennie, Acting EACH Chief Executive

One of the first things to strike me during a recent visit to The Nook was how everybody was working in a completely different way, but with huge confidence and as though they’d always been doing it. I guess our...

This is… Becca

Date Posted
23 June, 2020
Author
Becca Torricelli

Becca is 21 and was one of the first people to receive care and support from Chestnut Tree House when the hospice first opened in 2003. “In a world that is full of obstacles and uncertainty, it is rare but...

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