Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

Living our values

Date Posted
2 September, 2016
Author
Barbara Gelb

When Children’s Hospice UK and ACT merged to become Together for Short Lives five years ago, one of the first things we did was to think about our culture and our values – what kind of organisation did we need...

We have to fight for everything

Date Posted
14 July, 2016
Author
Onessa Cariazo

Being nurses couldn’t prepare us for being told our son Elijah had myotubular myopathy and was expected to live only a few weeks. We tried for five years for a baby before Elijah was conceived but when he was born...

Seriously ill children face a postcode lottery

Date Posted
10 July, 2016

The majority of children in England with life-shortening conditions, and their families, are being short changed or ignored, our recent survey has found. There are 40,000 children and young people with life-shortening conditions in England, and the number is rising....

Welcome to my World

Date Posted
8 July, 2016
Author
Steph Nimmo

There is not a day in my life that goes by where I don't wish I could clone myself, while this would be a somewhat scary prospect for my children it might make my life slightly easier. I describe myself...

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