News and Comment

Together for Short Lives is today launching a ground-breaking new Transition Awards Programme to fund innovative projects to help address the cliff edge in care experienced by young adults moving from children’s to adult services. Advances in medical technology mean...

Join us, together with families and services across the country, for this year’s Children’s Hospice Week (22-28 May). The campaign will be turning up the volume on children’s palliative care to raise awareness about the needs of seriously ill children and...

The Cochrane Pain & Palliative Care (PAPAS) Workshop on children’s palliative care on 24 February prompted me to set some thoughts down about the importance of research in children’s palliative care. It was so poignant to have Professor Myra Bluebond-Langner...

My name is Leah Booth and I am a Young Avenger for Together for Short Lives. I have Spinal Muscular Atrophy Type 2 which mean I need 24/7 care and support. I wanted to write to you regarding the transitions,...

In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...

Today, I am proud to be hosting a Parliamentary reception on behalf of Together for Short Lives – the UK charity which speaks up #forthe49000 children and young people in the UK with life-limiting and life-threatening conditions. The event is...