Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre.

Dusting ourselves down and living

Date Posted
1 March, 2016
Author
Amanda Harrison

Last night I was honoured to speak at an event at 10 Downing Street about the experience of raising my son James. James has Infantile Batten Disease – a neurological degenerative condition. There is no treatment, and no cure. James...

Bereaved parents shouldn’t have to fight

Date Posted
4 February, 2016
Author
Barbara Gelb OBE

Losing a baby or child is always immensely distressing – and a lack of joined up bereavement care is leaving many parents without adequate support when they need it the most. Unless you were watching Victoria Derbyshire’s show earlier you may have...

A crisis in palliative care for children

Date Posted
13 January, 2016
Author
Barbara Gelb OBE

These children have the weakest voice, their voice is not heard, they do not influence elections As we wake up to a new year we also need to wake up to the potential of a crisis in palliative care for...

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