News and Comment

Today, I am hosting a parliamentary reception on behalf of Together for Short Lives – the UK charity for children with life-limiting and life-threatening conditions. The event is part of the charity’s campaign to secure an around the clock service...

My name is Lucy Watts and I am 22 years old. I have a life-limiting/life-threatening form of a condition called Ehlers-Danlos Syndrome. I spend a lot of time in hospital, but I want to be supported in the community, in...

Hospices and NHS services must capture data about religion and ethnicity much more consistently from people using their services – as glaring gaps in this data are preventing effective planning of palliative and hospice services for Muslim patients and their...

We are fortunate to live in a country where end of life care is the best in the world. Like many across the children’s palliative care sector, I’ve spent time reflecting on the Economist Intelligence Unit’s (EIU) Quality of Death Index and...

The prevalence of babies, children and young people in Scotland with life-shortening conditions is rising, and an increase in palliative care services is required to meet their needs according to a new report, Children in Scotland requiring Palliative Care (ChiSP),...

Last week (Friday 23rd October), peers debated Baroness Finlay’s Access to Palliative Care Bill in the House of Lords. Together for Short Lives briefed peers on the importance of including children, young people and their families in the debate and called on them...