Timmy’s story: “When we were discharged we had to manage alone.”
Timmy had cerebral palsy, a learning disability and epilepsy. His mum Alison explains his condition,...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Emily’s story: “Every little moment”
When Emily was born with a severe heart condition, the doctors told family to take...
Emily’s Story: “Whilst praying for a future, we also had to prepare for the worst”
Everyone who met Emily was instantly captivated by her bright smile and inquisitive eyes. At...
Tehya’s story: ‘Eating Spaghetti Bolognese at 5am’
“She was such a tiny little girl when she was born – just 3lb 10oz,...
Malachi’s story: “Caring for Malachi is a continuous job”
Mum of four Sylvia was pushed to her limits when Covid-19 hit. She was providing...
Raphaella’s story: “I’m proud to be a Haven House nurse”
Nurse Raphaella speaks about her experience of working in children’s palliative care throughout the COVID-19...
Jalene’s Story: Full of sparkle
When Beverly thinks of her daughter Jalene at Christmas, it’s of her smiles in a...
Rio’s story: “I don’t know where I would be without the support from my children’s hospice.”
Happy, giggly Rio is nine and lives with his mum Nikki. He was born with...