Together for Short Lives is the UK charity to make sure the 99,000 seriously ill children and their families can make the most of every moment they have together – whether that’s for years, months or only hours. We work with families and the brilliant people and services that support them – in hospitals, in children’s hospices and in the community – to ensure that children and families get the support they need.
A fantastic opportunity has arisen to join our highly successful, passionate, and driven Practice Service and Development Team, as the project lead for our new energy service. This is a part time position (4 days per week), fixed term until the end of March 2026.
The role of the energy advisor is to advise on energy efficiency and maximise money available to families of children with life-limiting/life-threatening conditions who are experiencing/facing fuel poverty. Any family can experience fuel poverty, but the need to stay warm to keep pain at bay, and power specialist medical equipment means that families with a child with a life-limiting conditions are at particular risk. The postholder will provide dedicated telephone support and information, practical guidance and signposting to specialist services where required. You will be integrated into our family support team and will work alongside our existing team contributing to the day to day delivery of our Helpline service and our wider Family Support Hub. You will also support the policy and communications team by helping to identify the challenges faced by families with children with life-limiting conditions, to deliver systemic change to ensure no one faces fuel poverty at the end of life.
The postholder will also help develop training materials and run workshops at hospices in the South East region of the UK, delivering presentations, attending events and creating energy resources to support families and professionals caring for families where there is a child with a life-limiting/life-threatening condition.
You will be passionate about the development of children’s palliative care and be inspired by the potential to transform the lives of seriously ill children and their families. You will be the expert within our family support hub team providing specialist knowledge on support offered by fuel / boiler / heating providers, partner schemes and energy grant availability.
Please complete the forms below and a supporting statement outlining your relevant experience along with the summary details form below to firstname.lastname@example.org by 9am on the 9th October 2023.
Interviews will be conducted on the 19th October 2023 in Bristol any travel expenses will be reimbursed. Please ensure you are available for interviews on this day, we cannot reschedule.