Families who have been told that their child has a serious illness and may not reach adulthood say that health and care professionals often face challenges in having difficult conversations We have worked alongside families and health and care professionals...
As summer progresses, the policy environment relevant to families caring for seriously ill children remains active and wide-ranging. The publication of the NHS 10-Year Plan and the conclusion of the government’s multi-year Spending Review mark two major developments with long-term...
We welcome a new set of principles published by the UK Government to set out how it will work with charities. This includes news that people in England diagnosed with long-term health conditions will receive extra help and support from...
Our Chief Executive, Nick Carroll, has written a foreword introducing a new report into child deaths in England issued by the National Child Mortality Database (NCMD) today. Referring to the findings as “deeply worrying”, the report focuses on national trends...
I welcome much of the UK Government’s new 10-Year Health Plan for England. But it raises a number of questions which ministers must answer soon if it is to lead to real improvements in access to high quality, sustainable palliative...
Last night (1 July), MPs voted to pass the Universal Credit (UC) and Personal Independence Payment (PIP) Bill at second reading in the House of Commons. While the UK Government’s recent changes are a step in the right direction, significant...
