Perhaps an odd title for a blog as we enter a period of unprecedented political and social change both here and abroad. But events over the past 12 months, and indeed those ahead, have reinforced my belief that what unites...
As part of our wider conversation to inform the development of our new strategy, we will be publishing a series of blogs reflecting on what great children’s palliative care should look like in 2028, what needs to happen to get...
What should great children’s palliative care look like in 2028? It's a challenging question. Challenging for the families, children and young people we all support to look this far ahead. Challenging for many children’s palliative care services, operating in a...
In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...
Today, I am proud to be hosting a Parliamentary reception on behalf of Together for Short Lives – the UK charity which speaks up #forthe49000 children and young people in the UK with life-limiting and life-threatening conditions. The event is...
This Christmas, The Mirror is supporting Together Short Lives’ Christmas appeal to help and support the 49,000 children and young people, and their families, across the UK who are unlikely to make it into adulthood. Christmas is a special time for all...
