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Basic Symptom Control in Paediatric Palliative Care Free DownloadFree
Together for Short Lives
Compendium of local solutions for children's palliative careFree
Practical solutions to care challenges that have been developed by networks and services throughout the UK.
Evaluation of the Strategic Development of Children’s Palliative CareFree
Together for Short Lives work to improve the commissioning of healthcare for children and young people with life-limiting and life-threatening conditions through strong and effective strategic networks. Changes to the NHS means that new approaches to commissioning are needed in order to deliver improved health outcomes for children needing palliative care. This report identifies the potential for networks to influence commissioning, at the same time recognising the need for ongoing network development.
Moving to Adult Services: What to ExpectFree
This guide is for any young person with a life-threatening condition who is thinking about their future as an adult and wanting to consider their options and plan ahead.
Perinatal Pathway for Babies with Palliative Care NeedsFree
The pathway offers professionals clear guidance from the point of recognition that a baby has a life-limiting condition; ongoing care of the baby throughout their short life; end of life planning; and continuing care for the family into bereavement. The pathway is endorsed by BAPM (British Association of Perinatal Medicine), Bliss, the charity for babies born premature or sick and Child Bereavement UK.
A comprehensive list of our resources for professionals and parents. It lists our downloadable and hard copy publications, along with our online newsletters.
Setting up a Managed Clinical Network in Children’s Palliative CareFree
Guidance for local services and networks who are considering establishing Managed Clinical Networks to deliver children’s palliative care
Synopsis Vol 1 No 9Free
International digest of children's palliative care research abstracts. Selected abstracts from November 2016 - June 2017.
Together for Short Lives’ report to NHS EnglandFree
A national overview of the readiness of the children’s palliative care sector to implement the NICE End of Life Care for Infants, Children and Young People: Planning and Management Guideline
Workforce Signpost Guide - Overseas Recruitment of NursesFree
This guide features the experiences of a children’s palliative care organisation that has recruited nurses from overseas, along with some background information and signposting to resources where you can find out more.