News and Comment

When Children’s Hospice UK and ACT merged to become Together for Short Lives five years ago, one of the first things we did was to think about our culture and our values – what kind of organisation did we need...

Being nurses couldn’t prepare us for being told our son Elijah had myotubular myopathy and was expected to live only a few weeks. We tried for five years for a baby before Elijah was conceived but when he was born...

The majority of children in England with life-shortening conditions, and their families, are being short changed or ignored, our recent survey has found. There are 40,000 children and young people with life-shortening conditions in England, and the number is rising....

There is not a day in my life that goes by where I don't wish I could clone myself, while this would be a somewhat scary prospect for my children it might make my life slightly easier. I describe myself...

Our new animation shows the daily challenges families face caring for a child with a life-shortening condition, and the impact on family life. Through My Eyes raises awareness of the pressures facing families providing round the clock care and highlights the range...

Discovering I was pregnant with Callum was a wonderful, if unexpected surprise; a baby brother for my son Connor! Everything progressed well until Callum suffered oxygen deprivation at birth, resulting in severe brain damage. At six days old, I was...