Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre.
A number of peers have called for the government to transform the way in which children’s palliative care is planned, funded and provided in England. On Tuesday (14 March), several peers called on the government to make sure that NHS...
Together for Short Lives is today launching a ground-breaking new Transition Awards Programme to fund innovative projects to help address the cliff edge in care experienced by young adults moving from children’s to adult services. Advances in medical technology mean...
Join us, together with families and services across the country, for this year’s Children’s Hospice Week (22-28 May). The campaign will be turning up the volume on children’s palliative care to raise awareness about the needs of seriously ill children and...
The Cochrane Pain & Palliative Care (PAPAS) Workshop on children’s palliative care on 24 February prompted me to set some thoughts down about the importance of research in children’s palliative care. It was so poignant to have Professor Myra Bluebond-Langner...
My name is Leah Booth and I am a Young Avenger for Together for Short Lives. I have Spinal Muscular Atrophy Type 2 which mean I need 24/7 care and support. I wanted to write to you regarding the transitions,...
In October 2012 a Neurologist at Great Ormond Street Hospital gave my husband and I the worst imaginable news. Our youngest child Frank, aged 4, was diagnosed with Late Infantile Batten Disease, a rare, incurable, neurodegenerative condition. Frank had been healthy...
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