Together for Short Lives
Call the Helpline 0808 8088 100

A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team

Journal title
Health communication
Publication year
2019
Author(s)
Davis, C. S.; Snider, M. J.; King, L.; Shukraft, A.; Sonda, J. D.; Hicks, L.; Irvin, L.
Pages
931-941
Volume
34
Number
9

The death of a child creates especially poignant feelings and extreme stress, distress, and devastation for family members and healthcare providers. In addition, serious or long-term illness forces a reconstruction of our experiences with time and space. In this paper, we report on a long-term ethnographic study of a Pediatric Palliative Care Team (PPCT). Using the concepts of spatiality and temporality; Deleuze’s concepts of smooth and striated spaces; Innis’s concepts of space and time biases; Foucault’s concept of heterotopian space-places with multiple layers of meaning; and a related concept of heterokairoi-moments in time with multiple possibilities-we consider how the PPCT constructs and reconstructs meaning in the midst of chaos, ethical dilemmas, and heartbreaking choices.

Research abstracts